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Campaigners cry foul over NHS Digital plans to grant policy wonks and researchers access to patient-level data

Anonymous Coward
Anonymous Coward

"pseudonymised"

My daughter was diagnosed with a condition so uncommon fewer than 90 children per year are diagnosed with it in the entire UK. So I'm sceptical of just how effective the concealment this "pseudonymised" data provides if it is also "rich". Broadly sharing "rich" medical data inevitably opens up what should be private information.

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