Re: Lets hope
My partner did die from a disease that could already be cured by "big data analysis" after she'd told them AGAIN and AGAIN that she was at high risk of having that precise condition.
What do you know. It started when she was 14,it took her a YEAR AND A HALF for fuckwit NHS doctors to listen by which time it had already started to spread - it came back when she was 17, at which point the consultant told her to "fuck off home and die because we need the bed" and she died riddled on her 22nd birthday.
If you haven't worked it out already - HPV mediated cervical cancer as a result of abuse.
DO NOT accuse me of click baiting or being pessimistic about the NHS - there is not one situation in my entire 43 years of life regarding my own health or the health of people I care about where the No Hope Service haven't fucked up comprehensively.
My medical information is protected BY LAW because of my particular circumstances. Even UK government agencies have to ask for permission specifically on each & every occasion to access it. I do not want that detailed information - even if it is "anonymised" *to make a hollow laughing* anywhere near Google because if that information gets into the wrong hands it has been used as an excuse for murder, medical negligence leading to death, and worse.
Look up a girl called Tempest Smith, all she did was be of the wrong religion in a "civilised country" - we aren't talking Saudi or the UAE. Imagine what happens if the US government makes homosexuality illegal and every single person has put down on NHS forms their sexuality, or next of kin as their gay partner - or even what health conditions you may have.. Travel to the US to visit family - Google picks that up, finds out you're an uphill gardener or carpeteer - notifies the airport cops and you don't even get a foot off the plane... And it might just be a best guess on googles part and totally wrong. Good luck with getting any support from the UK government if Smeagol Gove or Boris Baggins is Prime Minister - Rees-Borgia would probably ask them to hurry up and execute you, and probably lend them a Lee Enfield SMLE and ammo just in case they were short (government cuts, y'all).
The data isn't the problem. The data is extremely useful for collating patterns and formulating theories and treatments and I would have zero problem if that's *all* it'd be used for, guaranteed. But that isn't the case and if you think it is you're either deranged or brain dead. Inbredistani companies have one rule and one alone - profit - it doesn't matter who gets hurt or what ecosystem is destroyed or what laws are ignored or broken - profit rules anyway anyhow.
And you seriously think that NHS senior managers and UK health ministers (who'd generally need six months intensive training just to wipe their own backsides successfully) have any hope of properly distributing and protecting this data? Don't make me laugh.
And the best part? Even when there is a cure for a serious illness the NHS will usually find a way to avoid providing it until it's too late, or doing a half assed job riddled with paperwork so that the actual chance of getting the treatment is about the same as Donnie Dickwit having an intelligent thought. The only department of the organisation that seems in my personal experience to be successful is the legal department, abrogation of patient murder and mistreatment, for the use of.