Jemma, I have read both your comments and feel very, very saddened. I used to call it the National Homicide Service after my mum was denied treatment (in my case a question of a GP who had reached his annual budget for referrals, and managed to delay the referral of my mum by three months), your No Hope Service is much, much better, imho.
Crikey it all started at age 14, makes me think of my daughters. Not knowing all the story, I assume you were probably not much older when you went through that with her... all my deepest sympathies!!! I do hope you are well surrounded by family and friends etc!
The removal from certain lists entails removal from other, non-related, lists??? This is of course unacceptable and needs to be fixed! I could not find anything on that, though (found nothing after a quick few g00gle's and am a bit busy right now, will try again later), I would really like to make sure this gets fixed, has it been reported [on] ? This listing issue seems to be one list to rule them all, want out of one, get out of all ...
As for racism, this seems to be a listing blunder. I'm not implying people making decisions in the UK's health system are never bigots, racists, homophobics, or whatever. But in this case it is much more likely a listing blunder, which, as your story implies, can kill, so we must make sure it gets fixed!
All the best,
PS: Your particularly fitting treatment (imho) for the heartless comment@rd up there (last part of your previous reply) managed to squeeze a smile out of me!