Re: Is it just a Monday thing...
"Genetic factor led treatment is probably going to bring about the next really big advance in medicine, which means if you want to benefit (for example, get a personalised cocktail of prostate cancer drugs proscribed) you're going to have to have your DNA sequenced and stored.
And to develop the technology, lots and lots and lots of people will need their DNA sequenced and put into a database for researchers to work on."
And that's the crux, because technically and scientifically you do. not. need. "lots of people" to do genetic typing of Disease X.
All you *need* is a voluntary donation of people actually afflicted with disease X (thus ensuring that any causative genetic defect is actually present) , and compare that to the already existing "standardised" DNA database called the Human Genome Project, augmented with , also voluntary, local/familial samples to chase down local variation.
This is a small amount of samples which can easily and effectively be anonimised for the actual research/ comparison (which is part of the actual analytical priocess to begin with...) , while the samples themselves can be destroyed once a complete sequencing has been attained ( also part of standard protocol).
Where exactly is the need for a large database? The science , technology, and protocols do not require it. At all.. So where's the money?....