Let's be clear
This is about being able to delete your Summary Care Record only.
Not your GP-held records and not your hospital-held records.
I sought advice (from the DoH then the ICO) on whether patients who:
* discover that their data has been uploaded to the SCR (without their knowledge or understanding) and don't want it there, or
* decide that they really don't want their data stored in this way (say after the next great data loss), or
* decide that there are better ways of sharing their information, or
* decide that what they signed up to (by not opting out of the SCR) is turning out not to be as they thought (expanding access, secondary uses of information, linking to other databases etc)
could get their uploaded data - their SCR - deleted. Their choice.
The DoH said no, as was widely reported.
So I wrote to the ICO as I could not see how this was compatible with data protection laws.
This prompted meetings between CfH and the ICO
and it appears that this is the outcome.
If you have a SCR and you are happy with it, fine.
If you don't, and you don't want one, then opt out now.
But I bet it won't be easy to get your SCR deleted.
I suspect patients will have to write to CfH, provide multiple proofs of ID (just like the Hampshire Health Record tries to insist on), may even have to attend in person somewhere, may need to "discuss it first" with someone.....